California Nursing Homes Are ‘Warehousing’ People With Serious Mental Illness, Experts Say
Back in 2021, as I was reporting on ReNew Health, a nursing home chain with a poor track record of care, I was struck by how many state-issued citations for nursing home violations involved people with serious mental illness.
Nursing homes are generally designed to help people rehabilitate after surgery or provide round-the-clock care for people who are older or physically disabled. Federal code says they’re “not primarily for the care and treatment of mental diseases.”
So I decided to see how many people with serious mental illness — defined as schizophrenia, bipolar disorder, and psychotic disorder — are living in California nursing homes, the kinds of places you’d place a parent who needs help with medication management or getting from bed to bathroom.
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How we reported this story
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Nearly a year ago, we began the process of requesting and analyzing complicated federal data to examine our starting question: How many people with serious mental illness are residents in California nursing homes?
First, I filed federal records requests for a dataset that covered all California nursing homes — nearly 1,200 — that accepted Medicaid and Medicare. The response was so massive that I couldn’t open the files on my computer. My colleague Elisabeth Gawthrop at APM Research Lab could, and the two of us analyzed that data.
What we found was astonishing not just to us, but to lawyers and other experts who are steeped in nursing home and mental health policy. As Toby Ewing, executive director of the state’s Mental Health Services Oversight and Accountability Commission, told me about our data findings: "You've done more work on this probably than the state of California has done.”
You've done more work on this probably than the state of California has done.
Nursing homes, said Rachel Tate, L.A. County’s ombudsman for long-term care, have become “de facto mental health centers.”
Tony Chicotel, senior attorney at California Advocates for Nursing Home Reform, put the problem in even starker terms. “For most patients with a serious mental illness, the nursing homes just serve as a warehouse — keeping them alive, keeping them fed and sheltered and out of the streets and out of people's way.”
Here are 6 key data points from our reporting
We found that in 2022:
- Nearly 22,000 nursing home residents had a serious mental illness; that’s 25% of all nursing home residents in California.
- Nearly 1 in 3 residents who’d been in a California nursing home for over a year had a serious mental illness.
- Almost 100 California nursing homes filled at least half their beds with people who had a serious mental illness; in several facilities, at least 8 in 10 residents had a serious mental illness.
- In 2022, nursing home residents with serious mental illness had spent nine months longer in their facility than those without serious mental illness.
- Less than 1% of long-term nursing home residents with serious mental illness received any psychotherapy in the week leading up to their annual assessments.
- Nearly one-third of residents in L.A. County nursing homes had a serious mental illness — the highest rate of any county in California.
More key findings from our reporting
- Legal experts and advocates told us that California might be violating the Americans with Disabilities Act, because the state has allowed so many residents with serious mental illness to end up in nursing homes, instead of community-based settings.
- The state lacks a full accounting of nursing home residents with serious mental illness, making it difficult to know how many of these residents are in nursing facilities at any given time.
- Gov. Newsom’s new mental health plan worries some experts that it could lead to more institutionalization.
More on this investigation
- Investigation: California Nursing Homes Are Becoming ‘De Facto Mental Health Centers’
- Methodology: How We Reported This Story
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This story is a collaboration between LAist, APM Research Lab and The California Newsroom (a collaboration of public media news outlets throughout the state).
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More on the team behind this investigation:
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LAist
- Elly Yu, Investigative Reporter
- Megan Garvey, Executive Editor
- Brian Frank, Editor, Digital and Special Projects
- Dan Carino, Senior Designer (illustrations)
- Samanta Helou Hernandez, Visual Journalist (photos)
- Kristine Malicse, Social Media Producer
- David Rodriguez, Partnership Producer
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APM Research Lab
- Elisabeth Gawthrop, Data Journalist
- Craig Helmstetter, Managing Partner
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The California Newsroom
- Mike Kessler, Investigations Editor
- Adriene Hill, Managing Editor
- Emily Zentner, Investigative Data Journalist
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Additional assistance
- Sherri Hildebrandt, Copy Editor
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Note: Kessler served as the main story editor and Hill edited the audio reporting.
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The Jane and Ron Olson Center for Investigative Reporting helped make this project possible. Ron Olson is an honorary trustee of Southern California Public Radio. The Olsons do not have any editorial input on the stories we cover.
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The project was also supported by the Carter Center’s Rosalynn Carter Fellowships for Mental Health Journalism.
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